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10-Jun-2016 10:49

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Elle – Do you still continue to have the burning and itchiness?Do you notice that it’s when your hair is shedding or right before a shed.So far the only thing that has made sense to me is what I read on wikipedia “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain. My scalp hurts so much with a burning sensation that goes away after a little while, or perhaps I ignore it or my tolerance level has increased, I’m not sure. Going back to the what feels like HOT SPOTS, or a burning feeling (no red scalp) sometime itching, mostly top mid back of the head. I did find a dermatolgist who was familiar with this disorder and explained anti-depressants have worked on most of her patients. The burning sensation is still strong and there are a few bumps on the top of my head that are, too.Another theory is that people who have this condition (sometimes called “ponytail syndrome”) have super-sensitive nerves in their scalp.” I wish I could help you figure out a definite cause, but I just don’t know. I try to massage my scalp, and it feels good as I’m doing it or as someone else is massaging it for me; but after the massage is done, it hurts even more; the tenderness, the itch, and the burning sensation increased. I have to say I’m very stress out right now due the hair loss…so this could be the cause too. I had an anxiety disorder way before TE came along.

There is usually one hair or a group of hair that is very tender. Sometimes the hair is brittle and literally snaps off. Now I have less hair, I can usually find where the problem is. I wish I could numb my head with some anagelsic or something?? My dermatologist put those shots in my scalp, and that helped for a week. I get desperate and try anything–I asked my dermatologist what to do and she said “Whatever works”. Blessings, Lynn Hello Lynn, My scalp not only hurts, but it’s very,very red. The more shampoos I try, it just seems to make it more irritated. My scalp feels hot,sore, and “crawlie” or “tinglie”. If hurts to wash my hair, it even hurts when the wind blows it.Apparently there a correlation between hair loss, telogen effluvium and scalp pain, also called trichodynia.This is what I found about it on Wikipedia: Trichodynia is a condition where the patient experiences a painful sensation on their scalp. Trichodynia often is associated with hair loss, but some studies show it has no connection to hair loss.The thing I found interesting about the Wikipedia definition was this part “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain.” That is definitely an explanation.

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Luckily I haven’t had one of this episodes since July. Do you notice anything where or when your scalp hurts?

In the absence of any correlation with quantitative parameters of hair loss or specific morphologic changes of the scalp, management remains empiric and tailored to the individual.